Hi everyone and welcome back to my blog. How are you? I hope that you are well. Today’s blog post is part two of my mum’s diary covering the final part of radiotherapy and the reason of my fluid blockage.
On the 26th December, Arvin was ok. He was getting up to fill the bath up and sit and relax a bit but when he got to the top of the stairs and had a dizzy spell and he fell back and went all the way down. So that night me and Arvin slept downstairs but he did have a mild headache. The next two days, he was alright.
On the 29th December, we went for his radiotherapy, Arvin told the person who was going to give him his treatment about him falling down the stairs but she didn’t think of anything wrong. After the treatment I wanted to ask about the tablets, if I can order some more, she told me that Arvin’s appointment been changed for the following day, from 9:45am to 3:15pm and that Professor Brown wanted to see Arvin.
On the 30th, we went to see Professor Brown after the appointment, thats after radiotherapy. Professor Brown reassured us that everything was going just right and the stronger dosage of radiotherapy will start on the 4th January and that they will be contracting on the larger tumour.and then we’ll do a blood test.
On January 4th we went to the H3 radiotherapy side. The radiation was much more than A1. Instead of 10 seconds, it was more than 30 seconds about 3 times and also we had a blood test. Blood test is going to be done every week for the next 4 weeks.
On the 5th January, the radiation was for 60+ seconds then 30 seconds and they changed position and another 30 seconds.The second day Arvin said that his legs were a bit shaky.
On the 6th, we were waiting in the waiting room and nurse Ian Edwards came and said he would like to speak to us. He told us that the treatment is going good and the blood tests were good. He said that HGC was 144 which is quite high but its gone down quite a lot. He then told us that this type of tumours started to develop in the womb. Although I had no problem with the pregnancy, it was tough living there. (Author’s note my mum had lost a child before I was born). Ian asked us if there are any questions that we would like to ask, so I asked why does Arvin feel so thirsty. Ian said that we will do a blood test.
On the 7th, Arvin had his blood test done and also had earlier radiothphry. 8th normal radiotherapy, 30 seconds, 30 seconds, 30.
On the 11th of January, I had to go with Arveena to the clinic to see the dentist. So Arvin had to go on his own for his radiotherapy. We met again when Arvin had a blood test done.12th-13th normal radiotherapy and on the 13th, he had a scan as well and he was told that his blood test results were normal.
On his last appointment which was on 21st January, the computers were down. Eventually he did have his treatment. He wanted to see the Dr but he was very busy. So the girl who treated Arvin told us that the doctor would call us. The Dr’s call came on the next day on the 22nd of January and I answered the phone and Ian Edwards said that Arvin was cleared from his brain tumours.
I’ll never forget that me, Arvin and sister Arveena just hugged each other and cried and thanked God for everything.
That’s it for now. Once again, I just want to thank a few people. Firstly, I would like to thank my mum, dad, sister and my Naughty Mamaji, for being by my side, throughout everything. I would like to thank Louise from BTS for sharing this with the community. I would like to thank Kanika, Shirley and everyone at Carers Trust for giving me the confidence to sharing my story and I would like to thank Joe for motivating me to getting back on the horse. And I would like to thank everyone at the hospital, my family and friends and everyone who I’ve met on this journey.
On a personal note, before my diagnosis, I was a front end web developer. Now in the first time in 4 years, I’ve built a website. It’s my dads website. Here’s the link.https://www.1stchoicecov.co.uk/
The next blog post will be more about my fluid blockage.
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Thanks and I will see you soon.